Local author visits Ramsgate Book Club

One of our East Kent Mencap Book Clubs had a very special visit from local author Peter Erlam earlier this month.

Peter, who wrote Ravi the Brainy Raven, was invited along to Ramsgate Library by Book Club Coordinator Sue Carmichael, to give members a talk about his book and show them some pictures from it. The group had fun discussing the book and even watched a short film about a raven.

As you can see, everyone had a fabulous time!

East Kent Mencap are great supporters of Beyond Words Book Clubs. With some help from our other Kent Book Clubs, they have set up two of their own, and are thinking about even more.

Want to find out more about Book Clubs and how to get started with your own? Head here.

Thank you to Tristan Kennedy for the fantastic pictures of the event.

Free short story Looking Out for Each Other

We know many people will have been affected by the riots over the last week, whether they have come across them in person or been frightened by the news.

Reading our picture stories together helps to open conversations with people with learning disabilities, aiding understanding and giving them a chance to express their feelings in their own words.

We have put together a short, five page extract from our book Mugged that shows how we can look after each other. Download it here.

You can find more resources like this at Learning Disability England. They have put together a list of different links from other organisations.

Beyond Words visits Princess Alice Hospice

A guest blog from our friends at Princess Alice Hospice.

Rachael Basak, Head of Community Involvement and Support at Princess Alice Hospice, first came across Beyond Words when she discovered Kingston University’s Victoria and Stuart project, which was developed to support people with learning disabilities with end of life care planning.

That project inspired Rachael to look for other creative ways the Hospice could reach people before, during and after death. Supporting people with learning disabilities and autistic people were 2 of 10 defined priorities identified by the Hospice in their work focusing on diversity and inclusion.

When Rachael contacted Beyond Words at their new base in Leatherhead, she was intrigued when they asked if she would be interested to run a Beyond Words book club at the Hospice. The result was a highly successful event this month, that welcomed over 40 participants, including people from the local community, staff and volunteers. Together, the group read “Ginger is a Hero”.

Rachael says: ‘It was so powerful to watch books coming to life in a completely different way, to challenge assumed abilities and, above all, to see the happiness and joy in the room.’

Nigel Seymour, Chief Executive of Princess Alice Hospice, said: ‘It was a brilliant experience and the highlight of my week. Loved the book too, but I may be biased, being a cat lover!’

The Hospice will be displaying Beyond Words books for all to enjoy and learn more about. Rachael now has a group of colleagues committed to supporting her to run regular Beyond Word book clubs at the Hospice. Get in touch if you would like to get involved and watch this space!

www.pah.org.uk

@pahospice

 

Could you be our Finance Volunteer?

Want to help us keep making a difference to people with learning disabilities? Do you have a background in bookkeeping or finances? We are currently looking for a new volunteer to join our small charity and help our finance department.

See the person specification below and get in touch if it describes you!

Finance Volunteer

  • Ensure accurate financial information is available for management accounts, budgets and forecasts, as well as for financial reports on activities and projects.

  • Support the development of the annual budget (and subsequent quarterly forecasts) in conjunction with the CEO and the treasurer.

  • Ensure accurate financial information is available for management accounts, budgets and forecasts, as well as for financial reports on activities and projects.

  • Run payments, bookkeeping and banking activities, maintaining up to date computerised records and maximising use of the software system (Xero).

  • Administer and record sales, including preparation of invoices, with an awareness of the chargeable levels of VAT on different Beyond Words items.

  • Assist with the year-end process, preparation of annual reports and financial statements.

  • Schedule the VAT and GifAid returns, so they are completed on a timely basis.

  • Adhere to financial policies including asset management and reserves.

This is a voluntary role for an experienced bookkeeper to assist with our day-to-day finances. Attendance at our Leatherhead office will be required.

If you’re interested in this voluntary role with Books Beyond Words please email your CV to Katie Smith, Chief Executive, katiesmith@booksbeyondwords.co.uk

Thank you to Tom for GiveACar donation

We received a rather unusual but very welcome donation this month. Tom donated his old car via GiveACar! They collected the car, sold it and made a donation to us.

Tom said “It was very quick and easy, everyone I spoke to was very polite and I had the morale high ground with a charity donation when I bought my next car.”

If you’re selling an old car, please consider donating it to Beyond Words with GiveACar.

A huge thank you to Tom! Your donation will keep us making a difference to people with learning disabilities.

Co-Production Week: Spotlight on our co-trainers

Lucy Alexander, our Business Development Manager, reflects on her time with our co-trainers for this #CoProductionWeek

It’s Co-Production Week! With co-production being one of our core values at Beyond Words, I wanted to write a little about my evening at the end of June at City Lit’s Centre for Learning Disabilities Education Celebration Evening.  

Beyond Words were celebrating another successful year of Book Club training and more specifically another successful year of working with the wonderful City Lit students, our co-trainers. These fantastic students help us train Book Club facilitators by demonstrating how Book Clubs work, and answering questions. 

The celebration evening was a showcase for the full range of the students’ talents and interests – and also a showcase for the wonderful results of true co-production.

Co-production is at the centre of the ethos of the Centre for Learning Disabilities Education just as it is for Beyond Words. Not long ago, our co-trainers and Book Club experts joined us to launch our latest title – Getting Help with Gas. They led the audience participation in an open book reading which gave our guests a real feeling for the power of the books. Later, in training sessions, this title opened up conversations about personal experiences of carbon monoxide leaks and the dramatic consequences. 

We run the training sessions to show others who come from all kinds of settings how a Book Club runs. While they are learning what a Book Club looks and feels like, I am learning about my co-trainer colleagues. As we read our stories we share experiences; of hospital visits, having an MRI (you get to listen to music but you have to lie still), how their doctors treat them (with kindness), the way their volunteering work makes them feel (proud) and what makes them laugh or blush. 

Reflecting on the Celebration Evening during Co-Production Week brings an extra glow to the memory. All the performances were co-created with the students. It really is inspiring to see the breadth of ideas and feelings that everyone involved in the showcase was able to express through their dancing, singing and music making. 

 

New end of life planning toolkit launched

The Victoria and Stuart Project have launched their brand new toolkit for helping people with learning disabilities understand end of life planning.

The toolkit includes lots of free resources and guides, including a new set of pictures from our charity, Beyond Words. Each picture in Let’s Talk About Funerals works as a standalone image, opening conversations around funerals.

The resources for the toolkit were created together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. They include resources and approaches to support staff with end of life care planning with people with learning disabilities.

Find out more about this fantastic new resource.

Free downloadable picture book supporting gas safety for people with learning disabilities

Free downloadable picture book supporting gas safety for people with learning disabilities

Getting Help with Gas is a new book that supports people with a learning disability to understand gas safety in the home and is available as a free download.

Books Beyond Words, the UK’s charity for empowering people with learning disabilities through accessible picture stories, has launched the latest title in their series, Getting Help with Gas. The full-length picture book is available to buy or can be downloaded for free from their website.

There are approximately 1.3 million people in the UK who have a learning disability. Research suggests 79% of people with a learning disability in 2022 were living in their own home or with their family. Getting Help with Gas can open conversations about common problems that can occur with gas appliances in the home, including dealing with scammers pretending to be from the gas company, and what to do when you suspect carbon monoxide poisoning. The book supports people who are already living independently, or who are thinking of living on their own; those who are in supported accommodation, and those who live with family and friends. It provides clear messages about what to do and who to call when things go wrong.

As the book has no words, instead using the shared language of pictures, it can also be helpful for people who do not speak English, or who have a cognitive impairment like dementia or an acquired brain injury.

Beyond Words stories encourage people with and without learning disabilities to describe what they see in the pictures, telling the story in their own way, whilst drawing on their own experiences to explain what is happening. Increased understanding is empowering, enabling readers to contribute to decisions that affect their lives.

All Beyond Words books are co-created and extensively trialled with people with learning disabilities, to make sure the stories are relevant and easy to understand by a wide range of different people.

Lead author Dr Keri-Michèle Lodge explained: “Issues like scammers at the door, contacting our utilities companies and dealing with problems with our homes are things we all have to deal with. For a person with a learning disability, a lack of accessible information around what to do can be a significant barrier to them feeling confident in their home, or knowing what to do in a crisis. Our new book, Getting Help with Gas, is a great way to start conversations and build understanding about how to get help, or solve problems when they start.”

Cadent Gas, who funded the book, said: “At Cadent, we constantly look for better ways to ensure that all customers have equal access to our products and services. To Support this, we are delighted to work with Beyond Words and their excellent team, to create this new way of being more accessible helping a person with a learning disability to understand, process and respond to information which supports independent living, whilst keeping themselves safe and warm”

Dr Lodge, a Consultant in Learning Disability Psychiatry at Leeds and York Partnership NHS Foundation Trust, collaborated with artist Lucy Bergonzi, who has illustrated many Beyond Words titles, and co-authors Nigel Hollins, Co-Founder of Beyond Words, and Professor Sheila the Baroness Hollins, Founder and Chair of Beyond Words, to create the picture story over many months.

Getting Help with Gas is available as a free download, or in paperback form (for £12.50). Guidance on how to use word-free picture stories is included for anyone unfamiliar with their practical application.

Free Book Club information sessions

Heard of our Book Clubs but not sure how they work? Want to know more about how they support people with and without learning disabilities to socialise and feel part of their communities? Interested in starting your own but looking for some support and guidance to get started?

We're holding a series of in-person trainings and virtual information sessions for everyone interested in our Book Clubs and Book Club in a Box project. They are all free of charge and hosted either Zoom or at City Lit in London. You can view the series on our EventBrite page or find links to individual events below.

Information sessions

Wednesday 15 May at 2pm


Training

Thursday 25 April at 2pm

Thursday 9 May at 2pm

Thursday 23 May at 2pm

Thursday 13 June at 2pm


We'll update this list throughout the year as more events are added. Want to talk to us directly about Book Clubs or the Book Club in a Box project? Head here.