Research conducted on the effectiveness of our book 'Getting on with Epilepsy'

Beyond Words’ book Getting on with Epilepsy has been the focus of a recent study, analysing ‘Wordless intervention for people with epilepsy and learning disabilities (WIELD).’ The study consisted of 40 participants, each of whom has a learning disability and epilepsy. Over the course of five months, the researchers found that participants experienced ‘improvements from the intervention [the provision of Getting on with Epilepsy] in their epilepsy-related knowledge, confidence and anxiety’.

The researchers note that ‘very few of the study participants had ever received information about epilepsy that was adapted to their communication ability’. This lack of knowledge is the key factor causing people with learning disabilities to forgo visits to healthcare clinics, potentially putting their health at major risk. Providing people with this knowledge is the core motivation behind our books, boosting their confidence and giving them a communication tool to use with healthcare professionals. 

We hope that carers and healthcare professionals will note these results and use this book, and indeed our other books, to assist people with learning disabilities understand and access healthcare. 

You can read the full research article on Getting on with Epilepsy here

Our Health Book Set, covering topics such as dementia, diabetes and cancer, can be found here.

If you have any questions about Getting on with Epilepsy, or any of our other books, please email admin@booksbeyondwords.co.uk